In about 15 hours from now, Dr. Cantu will begin to bring Elana out of the Coma. While they stopped giving her ketamine today, they decided to keep her down for one more day (using only propofol) to help soften the "re-entry".
I hope it helps because I have been told to expect some pretty crazy stuff over the next few days. Apparently, some patients even have temporary memory loss and don't recognize their spouses, children etc. That will all pass in time. The key is to just keep her as calm as possible and not let Elana injure herself.
I'm not counting any chickens here, but so far Elana has had a relatively uneventful coma. I have no idea that that means going forward, or if it has any correlation to the potential success of the coma. I figure it can't be a bad thing.
I wish there was more I could say or do. I may have to go offline for a day or two as I will be with Elana around the clock pretty much the rest of the time we are here. Maybe there will be a chance to give a quick update. Either way, THERE WILL NOT BE ANY WAY TO DETERMINE THE SUCCESS OF THE COMA UNTIL AFTER WE GET HOME. While the Coma week is all about getting through safely, Post-Coma is all about nursing back to health so she can travel back to Miami. We are not even allowed to ask her about her pain. The reason for this is that she is definitely going to be in pain after the Coma. She is going to feel like a train ran over her. Therefore, we don't want her thinking or confusing the Coma pain with the RSD pain, if the RSD pain has indeed subsided in full or in part.
Remember this is a disorder of the Auto-Nervous system. The ketamine coma is all about shutting down and re-training the brain. I guess the best way to think of it is that the pain alarm went off in her body two years ago and never stopped. Imagine the most painful thing that you have ever endured and then imagine that pain as constant for two years. Then imagine the pain increasing with each passing month. That is RSD. Everyone would always ask me how Elana was doing and was she having a good day. Unfortunately, the answer for an RSD patient is "There are no good days, only bad days and worse days". If you can't imagine or fathom it, you are not alone, neither can I.
Lets hope and pray good days lie ahead.
All of your e-mails, voicemails and blog comments helped me get through the week. I am forever grateful.